Tag Archives: Ethan Saylor

Announcing! The Ethan Saylor Memorial Film Festival

We are excited to announce that The Road We’ve Shared and The International Down Syndrome Coalition (IDSC) are hosting the first annual Ethan Saylor Memorial Film Festival!

Continue reading Announcing! The Ethan Saylor Memorial Film Festival

Ethan’s Law Saturday – Interview with Edward Rhodes


Our Saturday blogs this month will be devoted to documentary film about Ethan Saylor  – Ethan’s Law.

For today we literally went to the source and asked the director Edward Rhodes a few questions. Continue reading Ethan’s Law Saturday – Interview with Edward Rhodes

#ChrisBurke50 – Happy Birthday Chris!

Straight Outta Love For ChrisToday we celebrate the 50th birthday of a pioneer in Down syndrome advocacy. Chris Burke became famous with his role as “Corky” in Life Goes On – but he didn’t stop there. His music and his message have been a source of hope for so many – especially those in the generation that grew up with him.

Continue reading #ChrisBurke50 – Happy Birthday Chris!

Phoenix Recap – NDSC15

By: Stephanie Holland
This year the annual NDSC convention was held in sunny Phoenix, Arizona.  The 100+ degree weather made things outside of the conference venue a bit sticky, but inside everything was “cool.”  If I had to sum up my own experience this year I would use these three words: collaboration, friendship, and hope.
As you can see from the picture above, our table in the exhibit hall Stephanie Holland, Mardra Sikora, & Jennifer Smolkadid triple duty this year – Jennifer Smolka was gracious enough to
share her spot for 321 eLearning with The Road and Marianne from Joey’s Ups with Downs. We all w
ork together throughout the year on webinars and the 321 eConference, and at the NDSC gathering we got to work side by side.
Jennifer, Marianne, Mardra, and I got to be all together in person for the first time!

Continue reading Phoenix Recap – NDSC15

A Week of Milestones on the Road to #JusticeForEthan

#EthansLegacyFor two long years, Patti Saylor has advocated for change after the death of her precious Ethan. It has meant long hours, countless miles of travel and hours in meetings. The emotional toll of reliving that terrible evening over and over as she raises awareness and tries to ensure that something like this never happens again is unfathomable.
The Down syndrome and disability communities have been behind her, helping when and where we could, but for Patti and her family, this has been a very personal journey. There is good news however! This has been a week of breakthroughs worth celebrating! Today, I want to take a moment and update our community on some of the phenomenal progress that has been made, and celebrate Patti, the Saylor/Richmond families, and the thousands of people who have been touched in some way by #EthansLegacy.

Continue reading A Week of Milestones on the Road to #JusticeForEthan


By Stephanie Holland
My mother always told me that as you go through life, no matter what you do, or how you do it, you leave a little footprint, and that's your legacyI’ve been thinking a lot about the word “legacy” today.   It seems so incredible to me that we could be talking about Ethan – someone I knew – someone’s child, grandchild, nephew, brother – someone the same age as Josh – in terms of his “legacy” already.
I’ve been scouring the internet to try to find something that made sense to me.  The first thing that jumped out at me was this quote.

“as you go through life, no matter what you do, or how you do it, you leave a little footprint,  and that’s your legacy.”

That I can understand.  As human beings we all have an effect on the world and people around us.   Ethan was no different.   Looking through old photographs I’m reminded how he left a “little footprint” on my life and Josh’s.   If it wasn’t for him, I wouldn’t have one of my best friends.  If it wasn’t for him, I wouldn’t have known where to go for support and understanding when Josh was born.  Our lives would be different, less, if we hadn’t met Ethan.   He certainly didn’t plan that, but I’m grateful for the little footprints he made for us to follow.

“The greatness of a man is not in how much wealth he acquires, but in his integrity and his ability to affect those around him positively.”

Of course, most of the stuff out there on the internet about legacy applies to people who work at building a legacy, or have money to create a legacy.  I think this quote from one of Ethan’s favorites puts the word in a better context.

Ethan’s legacy is one of positive change.   He changed the people who knew him – and so many that he never met.   Thanks to the brave efforts of his family, Ethan’s footprints have created a path for advocacy and social change.  But, it’s hard for me to think of the shy little blonde -haired kid I used to know in those terms.

So today I toast what Ethan’s memory means to me:

*Here’s to Ethan and the little footprints he left us to follow.
May we always remember to show those we love how we feel,
Stand up for what is right,
And be grateful for the people who love and understand us no matter what.

Thank you Ethan. *