Tag Archives: disability

Disability Day of Mourning

Today is a day set aside to remember a group of people we have lost to soon.

People with disabilities who were killed by a family member.

From the memorial site:

Every year on March 1st, the disability community comes together to remember the victims of filicide – people with disabilities murdered by their family members. Vigils are held on the Day of Mourning in cities around the world.

We have identified 20 individuals who had Down syndrome on that list.


[scribd-doc doc=”301486713″ key=”YiTN2ZQ6mciCOgSnplM6″ mode=scroll]

There is no excuse, no reason that makes it understandable.

Politics and Language. Can parents #SayTheWord ?

Disabled. #SayTheWord

In our capitalist economy, our children with Down syndrome are seen by some as less than – not able to be “contributing” members of society.

So we fight.

We fight language in an effort to change perceptions. We fight against the “R” word because it demeans our loved one. We fight for person-first language in hopes that it will somehow convince people to care. We hope with all our being that saying our child is “a person who has Down syndrome” instead of “Down’s Syndrome child” will help society see the person before the label. Lately, we’ve even started using the phrase “happens to have Down syndrome,” perhaps hoping that people will see this person we love with all our hearts as we do – a human being – and not a drain on society at best, someone who should not have been born at worst.  We cling to phrases like “More alike than different,” because we feel the only way to create change is to convince society that people with Down syndrome aren’t so odd that they should be made fun of, or worse yet, ignored.

Continue reading Politics and Language. Can parents #SayTheWord ?