Advocacy around research is important, especially because Down syndrome is the least funded genetic condition by the National Institutes of Health (NIH).
Employment is a difficult subject in the Ds community. It is a reason for advocacy but it is also a source for heated, emotional debate within the community.
Of all the tools a good advocate needs, information is the most important.
Aging with Down syndrome creates new health challenges. Families are helping each other by sharing what they learn.
“The power of one, if fearless and focused, is formidable, but the power of many working together is better.” – Gloria Macapagal Arroyo
Perhaps our first taste of advocacy happens when we choose to tell our friends and family that our child has Down syndrome.
A great deal of advocacy work has centered on K-12 education. Today advocates are looking at new ways to define education for adults with intellectual disabilities.
One of the most important things we, as parents, can do for our children is allow them the space to make their own mistakes. Continue reading APRIL A TO Z BLOGGING CHALLENGE: Dignity of Risk
The disability community at large has been fighting for civil rights for decades.
In order to be good advocates today, it’s important to appreciate the hard work that has been done before. Continue reading April A to Z Blogging Challenge: Civil Rights
One of the best things about being different is finding others who are different like you.
If you’re so inclined, you can find a fantastic group of friends in what we refer to as the “Down syndrome community.” Continue reading April A to Z Blogging Challenge: Belonging